News 12 at 6 o'clock / Saturday, Nov. 1, 2013
AUGUSTA, Ga. (WRDW) -- "He's happy go luck he gets around on one leg, I mean he does everything that a normal kid can do he does," says Janet Landini.
She says her grandson understands that he is different than other kids. He was born with an extremely rare birth defect called Omphalocele-Exstrophy-Imperforate Anus-Spinal Complex (OEIS).
It occurs only once in every 200,000 to 400,000 pregnancies.
"He has a micro penis and he has no anus," says Landini.
As a result Landini says Antonio's body developed without the ability to expel bodily waste like most people. He also had to have a leg amputated.
Landini says 24-hours a day Antonio has to wear both a urostomy and colostomy bag. "If you run out of these there like $67 for just a box for just five," says Landini.
She says Medicaid covered the cost of all of his medical supplies until last week. She says she got a call from the medical supply company informing her that Medicaid was drastically cutting the number of bags Antonio would receive from 80 to 20.
"Even though his kidney's don't work the way ours do, he can still get urinary tract infections because of the bacteria in his system," says Landini.
She says without the bags Antonio has to stay home. "If he does not have any supplies he doesn't go to school," says Landini.
Landini says she does not know how she will afford his medical supplies but says she will find some way to make it happen.
"I need to make him happy healthy and still stay with us forever, I know it might not happen but that is what we have to go through," says Landini.