Wednesday, June 4, 2014
COLUMBIA, S.C. (WRDW) -- A 4-year-old's GoFundMe account broke a record for most money raised with $844,244 as of Wednesday afternoon.
The family's goal of $1 million would help Eliza O'Neill after being diagnosed with a rare terminal genetic disease called Sanfilippo Syndrome-Type A. A gene therapy trial scheduled for late 2014 is the family's only hope to make sure irreversible brain damage and the ability to speak isn't lost forever, the GoFundMe website said.
"4-year-old Eliza was diagnosed with a terminal disease that will eventually make her lose all motor functioning. Determined to get her to a potentially life-saving therapy trial, her parents created a GoFundMe campaign, a viral video, and a hashtag, #savingeliza," the GoFundMe website said.
The site said all funds would support the Gene Therapy trial at Nationwide Children's Hospital in Columbus, Ohio.