Tuesday, Nov. 20, 2012
AUGUSTA, Ga. -- When Bea Hall heard she was having a granddaughter, many beautiful thoughts popped into her mind: cheerleading, prom, weddings.
But after something looked wrong during the ultrasound, those thoughts quickly turned into survival mode.
Kiki O'Neal is 4 and a half years old, and all of her life she has suffered from trisomy 8 mosaicism, a rare chromosome disorder, which has left her with a cleft palate, a brain disorder and unable to speak.
The disease affects everyone differently, but doctors said she may never be able to smile or laugh or even walk.
But after four years of treatment at Georgia Health Sciences Children's Medical Center, Kiki never sits down and has a great laugh and perfect dimples. She's even slowly learning sign language.
Bea raises Kiki and her big brother, and while she says it's been a challenge filled with ups and downs, it's something she says she would never give up on.
"We want her here with us for as long as God will leave her with us. I've done CPR several times, I've sat on the living room floor and screamed to God not to take her," Bea said.
Kiki is participating in the "Race to 50K," a program to help the Children's Medical Center raise more money during the radiothon event in December.